Association Apffp
Nos missions- Informer et soutenir les patients et leur famille - Sensibiliser le grand public à cette malformation mais aussi le monde médical et paramédical- Œuvrer pour la reconnaissance des fentes faciales- Participer et réaliser des actions avec le centre référent et les centres de compétences et experts- Suivre l'évolution de la recherche et des avancées scientifiques concernant cette malformation.
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- 1vice-présidente
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