Association For The Bladder Exstrophy Community

The Association for the Bladder Exstrophy Community (A-BE-C) is an international support network for patients and families living with bladder exstrophy. We are united in a commitment to ensuring that all people affected by bladder exstrophy have the opportunity to realize their greatest life purpose and potential. Our community includes individuals living with bladder exstrophy, parent-exstrophy support groups, health care providers who work with patients and families living with bladder exstrophy, and others who share our commitment. We assist patients and families living with bladder exstrophy by providing education, support, and resources to help them navigate the medical and psychosocial issues relating to exstrophy.