Canadian Cdls Foundation

We provide families and individuals with CdLS the support and resources they need to love their best lives. We support timely access to accurate diagnosis, medical care and other resources. We support families in advocacy by participating in care team meetings, IEP meetings and individual one on one family support meetings. We send families to receive care at CdLS Centres of Excellence in the US where Canadian expertise is not available. We educate the public, communities, families and care providers about CdLS. We organize family gatherings, home visits and other events to support families and communities.