Cdls Israel Association

The Israeli CdLS Association is a nonprofit organization dedicated to supporting individuals and families affected by Cornelia de Lange Syndrome (CdLS) — a rare and complex genetic disorder. Founded by parents and run by volunteers, the association provides emotional, practical, and medical support through every stage of the journey. We connect families with expert clinicians, promote access to vital therapies and services, and advocate for research, awareness, and inclusion. Through nationwide community building, peer support groups, and collaborations with leading medical centers in Israel and abroad, we aim to ensure that no family faces CdLS alone. Our mission: to turn rare challenges into shared strength — with compassion, knowledge, and action. Follow our community on Facebook: https://facebook.com/The.Israeli.community.of.Cornelia.de.Langa