Celiac Disease Foundation
Celiac disease is one of the world’s most prevalent genetic autoimmune diseases, affecting an estimated 3 million Americans, 70-80% of whom are undiagnosed. Causing the body to attack its own small intestine, it can lead to many other devastating health conditions, including cancer. Unfortunately for the millions who suffer, celiac disease has largely been ignored by our federal government which provides little to no funding for research nor for public awareness of its serious consequences. Through strategic investments in research, education, and advocacy, the Celiac Disease Foundation seeks to remedy this by accelerating treatments and a cure. The Celiac Disease Foundation, established in 1990, is a leading global patient advocacy organization committed to accelerating diagnosis, treatments, and a cure for celiac disease. Our mission is to improve the health and well-being of the millions of individuals around the world affected by this genetic autoimmune disease through our strategic investments in research, advocacy, and education. Our iCureCeliac® patient registry and extensive patient recruitment services enable us to identify qualified patient candidates and speed their enrollment to advance critical disease research. Our unparalleled advocacy program has led the way to secure federal recognition and first-ever research funding from agencies including the U.S. National Institutes of Health and the Department of Defense. We adhere to the highest scientific and ethical standards as we work each day to promote understanding of celiac disease, empower our patient and provider community, and collaborate with partners and stakeholders to carry our mission forward.
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Decision-makers and verified team members
22 contacts with verified email or phone · masked until revealed.
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Jennifer Roop
Communications Director · Advertising & Marketing
EmailPhone - JM
Julia McBeth
Director of Scientific Affairs · Science
EmailPhone - MM
Marissa Mahoney
Senior Manager, Scientific Affairs · Science
EmailPhone - RK
Richard Kim
Product Manager · Sales & Business Development
EmailPhone - EK
Emma Kowzun
Scientific Affairs Coordinator · Science
EmailPhone - MG
Marilyn Grunzweig Geller
Chief Executive Officer · Other
EmailPhone - VW
Vanessa Weisbrod
Chief Education and Community Engagement Officer · Education
EmailPhone - MD
Meghan Donnelly
Director of Health Communications · Advertising & Marketing
EmailPhone - SS
Shirley Stegemiller
State Advocacy Ambassador for Celiac Disease Foundation · Healthcare & Human Services
EmailPhone
Showing 9 of 22 verified contacts
Top roles at Celiac Disease Foundation
18 distinct titles indexed · top 10 shown.
- 3director of health communications
- 2scientific affairs coordinator
- 1chief education and community engagement officer
- 1chief executive officer
- 1communications coordinator
- 1communications director
- 1communications manager
- 1development manager
- 1director of scientific affairs
- 1group facilitator
- +8more titles
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