Cll Advocates Network

The CLL Advocates Network (CLLAN) was founded in 2014 by representatives from Canada, Czech Republic, France, Ireland, Italy, Portugal, UK and the United States. It is hosted under the umbrella of the Leukaemia Patient Advocates Foundation (LePAF), a patient-led non-profit foundation based in Switzerland acting as a legal platform for self-sustained patient advocacy initiatives. The CLL Advocates Network is governed by a Steering Committee consisting of the 9 members, of whom 6 are patients and 1 is a carer. WHY IS CLLAN IMPORTANT- CLL is the most common leukaemia in the Western world, with approximately 4 to 5 people in every affected, but is poorly understood- Many countries do not have a community or patient groups dedicated to supporting CLL patients- A global network is indispensable to share knowledge, experience and best practices across countries, advocate for equitable standards of care and treatment standards and help improve patients´ understanding of clinical trials and the drug development process. CLLAN MISSION Improve CLL patient outcomes as a global network of CLL patient advocates.