Debra Schweiz
Die Patientenorganisation für Menschen mit Epidermolysis bullosa (EB). Mobile Beratung für EB-Betroffene und ihre Angehörigen, Vermittlung von fachspezifischer, medizinischer Betreuung, Beratung bei Rechtsfragen, finanzielle Unterstützung für Betroffene, Weiterbildungen und Wissensvermittlung, Unterstützung der EB-Forschung, weltweites Networking
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