Ern Ithaca
ERN-ITHACA is a patient centred network which meets the needs of those with rare congenital malformation and syndromes with intellectual and other neurodevelopmental disorders, both diagnosed and undiagnosed. Several thousand rare disorders, of both genetic and non-genetic origin, are thus covered by ITHACA.
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Verified contacts
7
available on Kipplo
LinkedIn employees
18
11 to 50 range
Open roles
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no listings
Distinct roles
7
indexed titles
Tech stack
0
tools in use
Monthly traffic
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organic / mo
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Decision-makers and verified team members
7 contacts with verified email or phone · masked until revealed.
- SC
Samantha Carletti
Epag Advocate for Pallister-killian Syndrome · Healthcare & Human Services
EmailPhone - NK
Nina Knight
Epag Ern-ithaca (Patient Advisory Board Member) · Other
EmailPhone - TZ
Tanja Zdolšek Draksler
Epag Ern-ithaca (Patient Board Vice-chair) · Other
EmailPhone - TK
Tjitske Kleefstra
Executive Board Member Ern Ithaca · Other
EmailPhone
Showing 4 of 7 verified contacts
Top roles at Ern Ithaca
7 distinct titles indexed · top 7 shown.
- 1epag advocate for pallister-killian syndrome
- 1epag ern-ithaca (patient advisory board member)
- 1epag ern-ithaca (patient board vice-chair)
- 1executive board member
- 1executive board member ern ithaca
- 1instructional designer
- 1project manager
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