Frambu Resource Centre For Rare Disorders

Frambu is a national resource centre for people with rare disorders in Norway. Its mission is to provide leading-edge expertise, knowledge and services for more than 120 rare disorders. Frambu gathers, develops and communicates knowledge about rare disorders and disabilities on behalf of individuals, both with and without a rare disorder, their close/ immediate family and the professionals who work with them. The goal is to ensure that children, adolescents and adults with impaired abilities can live a life in harmony with their condition, aspirations and needs.