Hypersomnia Foundation
Our Mission The Hypersomnia Foundation engages, informs and champions our global community to improve the lives of people with idiopathic hypersomnia and related sleep disorders.#hypersomnia #Beyondsleepy #narcolepsy #KLS Our Values PASSION: We give voice to the significant unmet needs of the hypersomnia community, continuously striving to realize our dream of a cure. VALIDATION: We understand what it is like to live with an invisible disease. When you share your story, we believe you. INCLUSIVENESS: We believe all people with hypersomnias deserve timely diagnosis and effective treatment in order to live a healthier, more fulfilling life. PARTNERING: We strive to connect our patient community to multiple stakeholders who are critical to improving the lives of people with central hypersomnias. Clinicians, researchers, pharmaceutical companies, educators, regulators and legislators benefit from strong ties to each other and the patient community. TRUST: We are a trusted source of medical information for people with hypersomnia, their physicians and the general public. Your donations and shared medical information are fully protected and used only in accordance with your wishes. DEDICATION: Our team of volunteers and employees devote their time and professional skills—with unwavering focus—to the best interests of the hypersomnia community.
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Lindsay Jesteadt
Chief Operating Officer · General Business & Management
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Robert Ambrefe
Member Board of Directors · General Business & Management
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- 1member board of directors
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