Know Rare

At Know Rare, we aim to connect people living with rare diseases to information about their conditions as well as to specialists, clinical studies, advocacy organizations, and more. Fueled by a proprietary technology platform created by a team of people who have been living with the realities of a rare disease, our goal is empowerment through understanding, tools and resources to manage everyday life. Know Rare improves access to the latest rare disease research through information from experts, providers, and sponsors to help to demystify the process for people considering participating in a clinical trial.