Lipodystrophy United

As a group of volunteers, LU is dedicated to meeting our communities’ needs in the US and globally. We provide an informational website that includes education, patient stories and links to partners and research. We connect patients to each other and to physicians around the world. We provide subtype specific community advisors who assist patients with emotional support and guidance as they navigate difficult issues such as communicating with medical professionals not aware of lipodystrophy (LD) or problems with insurance. LU provides daily updates to the community via social media including new research or community awareness activities. We answer all inquiries that come our way and if we don’t have the answers, we will help you find them. In addition, we actively participate in advocacy training and partner with the greater rare disease community.