Metabolic Support Uk

Metabolic Support UK is the leading patient organisation for Inherited Metabolic Disorders, supporting thousands of families worldwide. Metabolic Support UK was inspired by Jennifer Rachel Greene (1978 – 2007) who was born with a rare metabolic disorder called Cystinosis. Finding little information and support available following this devastating diagnosis, Jen’s parents, Peter and Lesley Greene, with help from family, friends and the medical profession, launched the charity in November 1981, encompassing all metabolic disorders. Our mission: to be the world’s leading advocate and provider of bespoke support to families, signpost to the best experts, raise awareness amongst the medical, healthcare, social care and teaching professions and fund research for treatments and ultimately cures. Metabolic Support UK’s work and reputation in delivering these objectives has spread from the UK to Europe and beyond. It is part of a worldwide collaborative network of groups and organisations, ensuring it is at the forefront of developments such as newborn screening and treatments. Metabolic Support UK continues to be committed to it’s vision of raising awareness and providing bespoke support to improve the lives of those affected by Inherited Metabolic Disorders, keeping Jen’s legacy alive. Our LinkedIn is designed as a way to share our work and to engage with professional contacts. Although we welcome healthy debate and feedback we will remove posts or comments that we feel are not in line with our project, campaign or organisational aims. Self-promotion, spam and irrelevant links aren't allowed nor is tagging people unknown to you in comments on our work.