National Foundation For Ectodermal Dysplasias

Together, we enrich the lives of people affected by ectodermal dysplasias by fostering community, providing education and support, and driving advocacy and groundbreaking research—creating a brighter future for all. The National Foundation for Ectodermal Dysplasias (NFED) is the worldwide expert on ectodermal dysplasias and the only advocacy organization in the United States dedicated to those living with these disorders. Our Vision The National Foundation for Ectodermal Dysplasias will be known as a recognized leader among health-related nonprofit organizations; for providing comprehensive services with loving care to individuals affected by ectodermal dysplasias and their families; for helping individuals and families benefit from early diagnosis and care; and for spearheading research that ultimately develops cures. Our Values -Culture that places people first-Compassion in understanding and assisting the needs of affected individuals and families-Comprehensive resources to connect individuals and families, health professionals, researchers, and others-Catalyst for progress in research and responsive to the research needs of its individuals and families-Impact in achieving results for individuals and families, health professionals, and communities-Integrity in relations with trustworthy and ethical practices.