Rare Disease Foundation

One in 12 people will be affected by a rare disease in their lifetime and children bear the brunt of this burden. The Rare Disease Foundation bridges the gap between research and care for children with rare diseases, funding inspired patient-focused research projects poised to directly impact their care and quality of life. Our vision is to transform the world of rare disease care. The Rare Disease Foundation empowers parents to solve problems that are commonly seen in the rare diseases by linking parents together locally and on the web with our Parent 2 Parent Resource Networks. We are always looking to expand so please contact us if you wish to start a group in your area.