Rasopathies Network Usa
RASopathies Network USA is a research advocacy organization. We aim to advance research on the Ras-related genetic syndromes by bringing together clinicians, researchers, and families. By facilitating collaboration, we will enhance collective knowledge and accelerate care and treatment for individuals with a RASopathy syndrome. RASopathies are a group of congenital genetic syndromes that are collectively as common as Syndromes include: cardio-facio-cutaneous (CFC), Costello (CS), Neurofibromatosis type 1 (NF1), and Noonan (NS) and Noonan-like syndromes.
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Lisa Schoyer
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Michelle Ellis
Advocacy Advisor · General Business & Management
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