Redefining Spina Bifida

Redefining Spina Bifida is a non-profit organization comprised of photographers, writers and advocates who have united to work towards a common goal – to redefine the world’s perception of spina bifida. Currently all contributing photographers and writers are directly affected by spina bifida and know first hand the challenges families affected by spina bifida face. Sadly most of society still isn’t aware of this birth defect and most who learn about spina bifida often fear the worst possible outcomes. We share real moments with babies, kids and adults living with spina bifida. We offer a glimpse into the lives of people living with spina bifida to help you see the trials, triumphs, and just how beautiful their lives can be. We're hopeful that together we can help transform the world's perception of spina bifida.