Swisspkd

SwissPKD was founded in December 2010 as an association to defend the interests of patients with congenital polycystic kidney disease in Switzerland. SwissPKD is the link between national and international PKD research and thereby ensures that its members have access to a world-wide exchange of information and activities. SwissPKD is a member of the PKD International Alliance - a union of PKD-patient organisations throughout the world. The association encourages patients to help themselves by exchanging information and setting up networks of those affected by the disease. We are engaged in a dialogue with the partners of those who determine health policies - the promoters of biomedical research and patient-partner organisations - in order to strengthen awareness of the needs of PKD patients and their families. We support research aimed at developing an effective therapy for persons suffering from PKD; we also publish information on the current status of research. SwissPKD is supported and advised by eminent scientists engaged in PKD research. It is the Swiss platform for patients and their families, scientists and the public; it informs the media and politicians about the disease and its treatment options, as well as the concerns and needs of PKD patients.