The Opll Foundation

The OPLL Foundation is a patient-led organization dedicated to raising awareness and providing support to those affected by OPLL, an uncommon and debilitating disease that causes the ligament inside the spinal column to turn into bone. We were founded by a patient who was diagnosed with OPLL at the age of 33. After undergoing emergency surgery, he realized that there was a lack of resources available to patients and their families. He started from his hospital bed, to create a space where people could come together and share their experiences, learn about the latest treatments, and connect with others who understand what they are going through. The OPLL Foundation plans to provides a variety of services to our community, including: Education and support: We want to translate scientific technical papers to common language. As well as form support groups and online forums where patients can connect with not only each other, but also with experts and caregivers. Advocacy: We work to raise awareness of OPLL and advocate for better treatment option. We will use social media platforms to let our voices be heard! Research: We will support research into the causes and treatment of OPLL We believe that everyone affected by OPLL deserves access to the information and support they need to live their best lives. We are committed to making a difference for our community and one day finding a cure for this disease. Join us in our fight against OPLL! Visit our website at - Coming soon Follow us on social media! Donate to our cause