Aviva Rosenberg
Co-founder & Co-president at Gaucher Community Alliance
Based in Pittsburgh, United States
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Seniority
C-Team
Department
General Business & Management
Location
Pittsburgh
Industry
Non-profit Organizations
Company size
5
Contact information
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a•••••••@gauchercommunity.org
Phone
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Background
About Aviva Rosenberg
Highly accomplished professional and manager with 25 years experience in healthcare, law, business, non-profit management, patient advocacy and leadership. Skilled in Patient Advocacy, Nonprofit Organizations, Strategic Planning, Strategy, and Legal Compliance. Proven success as a leader connecting individuals, managing budgets, accomplishing client goals, completing projects and supervising employees. Acts as a mentor and advocate for rare disease patients in the Gaucher community and raises awareness through speaking at patient educational events, Jewish community programs, conferences, Gaucher and rare disease symposiums and pharmaceutical meetings. Served on multiple non-profit boards and committees, including current and co-founding president of Gaucher Community Alliance and Vice President of the International Gaucher Alliance. Acts as a patient advisor to Sanofi Genzyme, Takeda, and Prevail Therapeutics. Frequent speaker on rare disease, patient voice and government advocacy. Looking to use my established skills for new challenges in patient advocacy and government affairs.
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