Jim Raffone

Background

About Jim Raffone

Since 2013, I’ve been the heart and driving force behind a nonprofit dedicated to supporting families battling Duchenne Muscular Dystrophy (DMD). I’m a passionate leader who thrives on bringing people together to create meaningful impact. With a strong background in strategic planning, business development, and day-to-day operations, I approach every challenge with patience, compassion, and a problem-solving mindset. Whether it’s planning successful events, market research, driving fundraising efforts, or leading strategic initiatives, I’m dedicated to building high-performing teams and fostering strong relationships. I believe in creating efficient processes that not only deliver results, but also support and uplift those involved. Organized and driven, I ensure seamless execution and lasting growth, always with a people-first approach. Exceed the highest levels of confidentiality, accountability, and ethical standards Always lead with passion, resilience, and an unwavering commitment to making a difference Demonstrated ability to turn awareness into action, leading to increased funding, research advancements, and public support Extremely detail oriented and proficient in resolving bottlenecks and streamlining procedures Spearhead groundbreaking initiatives to raise awareness, fund critical research, and provide direct support to families battling DMD **Endurance Athlete | Advocate | Record-Setter** Pushing the limits of human endurance while raising awareness for Duchenne muscular dystrophy. Honored to have achieved the following milestones:**World Record Holder** – Performed push-ups at the highest altitude ever recorded at Mt. Everest Base Camp.**Guinness World Record Setter** – Created the longest LEGO chain in history at 3,108 feet.**Recognized for Impact** – Awarded **Keys to the City** by three different mayors across three states.**Advocate for Change** – Spoke before **U.S. Congress** to further awareness and support for Duchenne muscular dystrophy.**Elite Endurance Athlete** – -**11x Finisher** of the NYC Marathon -**10x Finisher** of the NYC Marathon *(Possible typo? Let me know if you meant another race!)*-**2x Finisher** of the NYC Half Marathon -**2x Finisher** of the G2G Ultra -**2x Finisher** of the Alps to Ocean Ultra (A2O) in New Zealand -**Finisher** of the Bad Beaver 100 Every race, every challenge, and every record is dedicated to the fight against Duchenne. Pushing boundaries, breaking barriers, and never stopping until we find a cure.