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Stefan Bos

Eupati Fellow at Sma Europe

Based in Dronten, Netherlands

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Dronten

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Research Services

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s•••••••@sma-europe.eu

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Background

About Stefan Bos

Hi, I’m Stefan Bos — a passionate patient advocate, SMA Europe board member, and representative for Spierziekten Nederland. Living with spinal muscular atrophy (SMA) myself, I’m committed to amplifying the patient voice in research, policy, and access to treatment. I regularly speak on disability rights, inclusion, and the power of lived experience in healthcare innovation. Alongside my advocacy work, I’m also the founder of Inventar.nl, where I’ve been building user-friendly, accessible websites for over 7 years. With 150+ websites launched, I love helping organizations grow their online presence with design that works for everyone. Whether I’m presenting to medical students, advising researchers, or improving digital accessibility, my mission stays the same: make the world more inclusive—online and offline. Interested in collaborating? Let’s connect!#PatientAdvocacy #SMA #EUPATI #DisabilityInclusion #WebAccessibility #PublicSpeaking #WebDesign #HealthcareInnovation

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