Sick Cells
Sick Cells' mission is to elevate the voices of the sickle cell disease (SCD) community and their stories of resilience. In highlighting the grave disparities this community faces, we hope to influence decision-makers and propel change. Sick Cells envisions that this narrative work will achieve the following: 1. Ignite public interest making sickle cell a public health concern 2. Humanize SCD, which is a relatively invisible disease that affects people of many races and ethnicities 3. Inspire the general public, who do not typically recognize their day-to-day encounters with SCD, to advocate for SCD 4. Influence policy makers, educators, employers, healthcare administrators and healthcare providers to act to improve treatment and care for the SCD population 5. Drive research and drug development which will lead to better treatments 6. Empower the sickle cell community, regardless of hemoglobin type, to share their stories and know that they are not alone Through these actions, we hope to improve the quality of life and care for people living with the most common genetic disorder by challenging current policy and shifting social norms.
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Verified contacts
16
available on Kipplo
LinkedIn employees
16
1 to 10 range
Open roles
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no listings
Distinct roles
11
indexed titles
Tech stack
0
tools in use
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Decision-makers and verified team members
16 contacts with verified email or phone · masked until revealed.
- AV
Ashley Valentine
Patient Engagement Consultant · Other
EmailPhone - JD
Jamie Dornfeld
Chief of Staff and Operations · Operations
EmailPhone - MV
Marqus Valentine
Co-founder · General Business & Management
EmailPhone - MA
Melissa Akinlawon
Westat · Other
EmailPhone - AT
Abrina Tainter
Director of Operations · Operations
EmailPhone - MJ
Maggie Jalowsky
Director of Advocacy · General Business & Management
EmailPhone - AK
Arielle Krahenbuhl
Community Programs Coordinator · Education
EmailPhone - FN
Faith N. Adjei-Sarpong
Sickle Cell Advocate · Healthcare & Human Services
EmailPhone - KH
Kelly Hawthorne
Director of Community Programs (Sickle Cell Disease Advocacy) · Other
EmailPhone
Showing 9 of 16 verified contacts
Top roles at Sick Cells
11 distinct titles indexed · top 10 shown.
- 2community programs coordinator
- 2program manager
- 1chief of staff and operations
- 1co-founder
- 1director of advocacy
- 1director of community programs (sickle cell disease advocacy)
- 1director of operations
- 1patient engagement consultant
- 1sickle cell advocate
- 1top bloke
- +1more titles
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